This page encourages the reporting of consumer involvement as good practice
The consumer involvement element of a study is rarely reported in research publications (Fergusson et al 2018). The lack of reporting limits the research community’s understanding of both why to undertake and how to approach consumer involvement. Clearer reporting in research manuscripts will enable researchers and research organisations to better understand the impact of involvement within different contexts (Brett et al).
In 2015, the British Medical Journal (BMJ) was the first major journal to request that authors include a ‘Patient and Public Involvement (PPI) statement’ within the methods section of their papers in all research articles.
The journal advises authors to consider the Guidance for Reporting Involvement of Patients and Public (GRIPP2). Checklists have been developed to improve the quality and transparency and consistency of consumer involvement reporting:
- GRIPP2 long form: For use where consumer involvement is the primary focus of the study.
- GRIPP2 short form: For use in any study where consumer involvement is a secondary or tertiary focus.
The Guidance and checklists were developed using EQUATOR methods (international evidence based and consensus informed) and can be accessed from the EQUATOR website.
- Fergusson, D et al. The prevalence of patient engagement in published trials: a systematic review. Res Involv Engagem (2018);4
- Brett, Jet al. Reaching consensus on reporting patient and public involvement (PPI) in research: methods and lessons learned from the development of reporting guidelines. BMJ Open (2017); 7
- Staniszewska, S et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. (2017);358:j3453.